Go Back   Horizons Unlimited - The HUBB > Planning, Trip > Make a Difference

Make a Difference Have you 'made a difference' while travelling, by fundraising or donating time and energy to a worthwhile cause such as wildlife conservation or tsunami reconstruction efforts? Tell us how you did it, what the experience was like, and how others can help. Are you a non-profit organisation or individual who knows of an opportunity for travellers to help out in a less developed country? Tell us about it and provide contact details here.
Contact Overland Solutions for all your custom modifications and setup for overland travel.

The Ted Simon Foundation - find out more!

Reply
 
LinkBack Thread Tools Display Modes
  #1  
Old 5 May 2010
Registered Users
New on the HUBB
 
Join Date: Apr 2009
Location: Wichita Falls, Tx
Posts: 6
Expedition Awareness

First off, Thanks Grant for believing in our cause and offering this area for me to post our project.



Expedition Awareness is our project to raise awareness and funding for Adrenoleukodystrophy. This is a deadly disease that affects 1 in 18,000 little boys. There was a movie based on a true story several years back that offers some insight into disease called "Lorenzo's Oil."



We found out recently that our seven month old boy has this disease. Earlier we found out my wife had the potential as a carrier when she was 7 months pregnant with our son. She was adopted and family medical history was slow coming. We also learned that her brother passed of this disease. Within the past few days we were told that our nephew also has this genetic disease.

ALD is a demyelinating disease. Like the electrical wire we use, our nervous tissue is surrounded by an insulating sheath. Adrenoleukodystrophy strips away this insulation causing all manner of problems eventually leading to a vegetative state before death. Because the disease is X linked, it is the females that can carry this disease and males that die from it. We will soon find out if our 2 year old daughter is a carrier. We pray she is not for the sake of her having children one day.

I began working on this project 9 months ago with the help of a close friend with hopes our son would not get the faulty X chromosome but realizing something must be done. We got the bad news this past January.

My solo overland expedition will begin in Antelope Wells, NM and will criss-cross the Continental Divide, 95% off road, to Bannf, Canada. From there I will head east across four provinces before turning south for New Orleans, the HQ for the ALD Foundation.

I was an avid rider not even owning a cage for myself but sold my bikes to pursue this project. I chose to buy a used 2008 Jeep Wrangler four door for this mission and I will be pulling an Outlander overland trailer. I will be camping the entire way.

The rigs:





I am filming an HD documentary in the style of "Survivorman" and "Long Way Down/Around" for distribution for free through the ALD Foundation.

Even though my friend and I have done all our own work from website to gear swap on the Jeep to save money, this project has tapped my families finances.



My mission is TWO FOLD:

First and foremost, I want to educate the public to the need for EARLY DIAGNOSIS of this disease. To do this, I have partnered with several media sources, print, radio, and television. The disease has a very fast progression and needs to be diagnosed and bone marrow transplant surgery done in the first couple of months to hopefully stop progression of the disease.

Second, I need to raise money to help fund this project and research for new clinical trials via the ALD Foundation. A new and exciting trial treatment was announced in Europe late last year. The ALD Foundation has been instrumental in getting the trials approved in the US - no small feat. We want to do our part to help further fund this process.

For information concerning the trials, click the image below:



These are both very important goals and is it goes with anything worth doing, it will be difficult. But through perseverance and the generosity of others, I and many others, believe we can make a difference.

To learn more about ALD, our project or to follow our progress visit:

: Expedition-Awareness | Exploration for a chance at Hope.
: EA Facebook
: EA Twitter
: The Adrenoleukodystrophy Foundation: Information and Research on ALD, AMN and Addison's Disease

Once the expedition launches (May 2011) you can follow my spot tracking page. I will also be keeping a video journal and updating my online journal almost daily as I will have satellite connectivity for the entire route thanks to Outlander.

I appreciate your taking the time to read my lengthy post. There is much to say and it is often difficult to narrow down the message. Much more is being done and if you would like to learn more you are welcome to contact me directly at philgolden at expedition-awareness dot org.

Ride like you are invisible,
Phil
__________________
Phil Golden - Expedition Awareness
Reply With Quote
Reply


Currently Active Users Viewing This Thread: 1 (0 Registered Users and/or Members and 1 guests)
 
Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
Breast Cancer Awareness Mr Steam Turbine Make a Difference 2 6 Jun 2009 00:05
expedition vehicle moodybloo 4WD Overland Tech 5 10 Jul 2007 23:13
Hmm, what about this as an expedition vehicle? Alexlebrit 4WD Overland Tech 8 4 Jul 2007 11:44
Expedition car wanted!!! driving africa 4WD Overland Tech 8 25 May 2006 22:12
Hiring a Expedition 4x4 nasz 4WD Overland Tech 2 30 Nov 2004 16:47

 
 
 

NEW! HU 2015 Motorcycle Adventure Travel Calendar is now available! Get your copy now for some terrific travel inspiration!

HUGE, 11.5 x 16.5 inches, beautifully printed in Germany on top quality stock! Photos are the winning images from over 600 entries in the 9th Annual HU Photo Contest!

Horizons Unlimited 2015 Motorcycle Adventure Travel Calendar.

"The calendar is magnificent!"

"I just wanted to say how much I'm loving the new, larger calendar!"

We share the profit with the winning photographers. YOU could be in the HU Calendar too - enter here!


HU DVD Autumn Special!

Take 40% off Road Heroes Part 1 until October 31 only!

Road Heroes features tales of adventure, joy and sheer terror by veteran travellers Peter and Kay Forwood (193 countries two-up on a Harley); Dr. Greg Frazier (5 times RTW); Tiffany Coates (RTW solo female); and Rene Cormier (University of Gravel Roads).

The first in an exciting new series, Road Heroes features tales of adventure, joy and sheer terror by veteran travellers."Inspiring and hilarious!"

"I loved watching this DVD!"

"Lots of amazing stories and even more amazing photographs, it's great fun and very inspirational."

"Wonderful entertainment!"

Check it out at the HU Store! Remember to use Coupon Code 'HEROES' on your order when you checkout.


Renedian Adventures


Renedian Adventures

What others say about HU...

"I just wanted to say thanks for doing this and sharing so much with the rest of us." Dave, USA

"Your website is a mecca of valuable information and the DVD series is informative, entertaining, and inspiring! The new look of the website is very impressive, updated and catchy. Thank you so very much!" Jennifer, Canada

"...Great site. Keep up the good work." Murray and Carmen, Australia

"We just finished a 7 month 22,000+ mile scouting trip from Alaska to the bottom of Chile and I can't tell you how many times we referred to your site for help. From how to adjust your valves, to where to stay in the back country of Peru. Horizons Unlimited was a key player in our success. Motorcycle enthusiasts from around the world are in debt to your services." Alaska Riders

contest pic

10th Annual HU Travellers Photo Contest is on now! This is an opportunity for YOU to show us your best photos and win prizes!

NEW! HU 2014 Adventure Travel T-shirts! are now available in several colors! Be the first kid on your block to have them! New lower prices on synths!

HU 2014 T-shirts now in!

Check out the new Gildan Performance cotton-feel t-shirt - 100% poly, feels like soft cotton!


What turns you on to motorcycle travel?


Global Rescue, WORLDwide evacuation services for EVERYONE

Global Rescue is the premier provider of medical, security and evacuation services worldwide and is the only company that will come to you, wherever you are, and evacuate you to your home hospital of choice. Additionally, Global Rescue places no restrictions on country of citizenship - all nationalities are eligible to sign-up!


New to Horizons Unlimited?

New to motorcycle travelling? New to the HU site? Confused? Too many options? It's really very simple - just 4 easy steps!

Horizons Unlimited was founded in 1997 by Grant and Susan Johnson following their journey around the world on a BMW R80 G/S motorcycle.

Susan and Grant Johnson Read more about Grant & Susan's story

Membership - help keep us going!

Horizons Unlimited is not a big multi-national company, just two people who love motorcycle travel and have grown what started as a hobby in 1997 into a full time job (usually 8-10 hours per day and 7 days a week) and a labour of love. To keep it going and a roof over our heads, we run events (22 this year!); we sell inspirational and informative DVDs; we have a few selected advertisers; and we make a small amount from memberships.

You don't have to be a Member to come to an HU meeting, access the website, the HUBB or to receive the e-zine. What you get for your membership contribution is our sincere gratitude, good karma and knowing that you're helping to keep the motorcycle travel dream alive. Contributing Members and Gold Members do get additional features on the HUBB. Here's a list of all the Member benefits on the HUBB.


Books & DVDs

amazon

All the best travel books and videos listed and often reviewed on HU's famous Books page. Check it out and get great travel books from all over the world.


Motorcycle Express for shipping and insurance!

Motorcycle Express

MC Air Shipping, (uncrated) USA / Canada / Europe and other areas. Be sure to say "Horizons Unlimited" to get your $25 discount on Shipping!
Insurance - see: For foreigners traveling in US and Canada and for Americans and Canadians traveling in other countries, then mail it to MC Express and get your HU $15 discount!




All times are GMT +1. The time now is 15:38.